
UPDATES:
AMY
August 21 | 6:00 PM
It has been a little while since we have updated Amy's progress. Last week we had her first follow up appointments with the burn doc and the ortho doc. Since she is no weight bearing on both legs, just getting her to the doctor appointments are no easy task. She can't bend her legs and needs someone to hold her legs while she uses her upper body to move from wheelchair to bed, etc. This makes getting into a car close to impossible. If the wheelchair isnt a few inches away from the bed or seat that she is moving to, that makes it pretty impossible. If she has to move up from a wheelchair to a seat that is several inches higher....forget about it. So right now we cannot go in our own car. We have to get a ride that is wheelchair accessible. Any guesses on how much that costs? We got a quote for $70 each way to go to her primary docs office which was 5 miles from our house. We got quotes for $140 each way to go to our ortho and burn docs at Swedish. Not covered by insurance.
We found a rental for $125 for a day. Were able to wrap two appointments in a 24 hour period. What a pain.
Her burns are progressing quite well, as we learned last Thursday. They aren't very painful anymore. This is a blessing.
Her knee, as we learned on Friday afternoon, is dislocated. She had to go to the OR on Monday (21st) to go under anesthisia to have her knee realigned. They put a large external fixator back on her leg to hold everything in place. Good news is we may not have to do a major surgery to repair ligaments in her knee. Bad news is we may have a 9th surgery to add more surface area to keep her knee from moving off of her Tibia Plateau.
We will know more on Friday.at her check up....yep another trip to the doctors in which we get to pay hundreds of dollars just to get her there and back.
Some more good news....though she has an external fixator back on her leg, she will be able to start putting weight on her one leg, almost immediately. The fixator prevents her from being able to damage the bones or joints by putting weight on her leg. We just need to work with PT over the next week or two to get strength back in her leg and get control of the pain and she may be able to transfer from wheelchair to other things with weight on her one leg. This may allow us to use our own vehicle and Amy will no longer be completely home bound. I am guessing this will take us a little time but a week or two is a much better length of time than 6-12 weeks. At least something to compensate for having to have an external fixator again.
Her right leg is making some good progress too. She might be able to start putting a little weight on that leg in the next 2-3 weeks. She has pins in her foot (sticking out through the skin) that will probably be removed in the next couple of weeks. She wears a boot on that leg which we can take off occassionaly to clean etc, but has to stay immoblile while it heals. The good news there is we didn't have to have a cast.
We have known from the beginning of this, that we are on a long road to recovery Mentally we think through that and except that. Emotionally, the reality of it all can really get to you. The magnitude of it all can be overwhelming, so Amy (and I) have our moments where it seems to be so much to take on. We are reminded that we need to take it one day at a time. One day at a time and we will get to the finish line.
August 9 | 6:00 AM
It has been a busy few days. Amy came home Monday late afternoon. It was a day of anxiety. We had the help of a wonderful medical staff that took such good care of Amy and then we were anticipating the journey placed before us to do this on our own. Excited to come home! Nervous about whether we would be able to do it without the help of such kind and capable doctors and nurses.
Amy came home in a medical transport because she cannot put wait on her legs and currently has limited mobility and flexibility in her legs. Difficult to get in a car when one or two people have to hold her legs while she tries to transport her body from wheelchair to car seat with her upper body. That ride was a bit traumatic for Amy as I think it reminded her of the reality of her injuries and how dependent she is on others right now.
First 24 hours home were difficult. She had some nausea and we had some difficulty controlling her pain. One of the meds that she takes was not available right away at the pharmacy. We learned that it was pretty important after all:-( So far the second 24 hours have been a bit smoother. Pain is better controlled. So far no nausea. Slept really well through the night. A big 'thanks' to our awesome friend Mindi who came down from Grand Junction for the week (her second week with us) to support us while I work (and basically help 24 hrs a day). This first week home has been an easier transition because of her. Don't want to leave out all the others who are bringing us meals, coming over to help, helping us get the boys ready for school, etc. We are so blessed...makes a long road easier to handle.
Another update - Her batadine 'scab' over her donor site came off completely today. In the morning about 90% of it was free from her leg. In the evening the last 10% came off. It looks good and removes a lot of discomfort!
And, we got to see Kirk and Stacey for the first time since we watched them all leave a terrible accident in a helicopter. They are a little more mobile than us so they came to our house. So good to see them and witness in person that we are all surviving.
Good friends and family are the best therapy!
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